We have the courage to call it fibromyalgia and live with it too

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Originally posted on Ladybug45:

I came across some blogs that flat out say that fibromyalgia is fake and that we are not as sick as we think we are, to put it nicely.

Well, how I wish that were true, for myself and the people I love. I did not give up the things I love doing in order to lay around and sleep most of the day. I did not want to let go of the plans I had of biking the many trails in our state parks. I would never give up hiking in different seasons in our state park. I still am determined to get back on the trails and enjoy the beauty I miss so much.

Why would I give up any of the hobbies I use to be able to do with a passion but now I have to wait for a good day? Why would I do that?…

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3 YEARS REMISSION ACCOMPLISHED!!

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We’ll it my week to celebrate 3 yrs in remission and counting! I’m half way there!! 5 is the Magic number and hell YES!!! I am gonna make it. I’ve come too far and fought to hard not to! Life is good, it’s different now, but still good! I’m so grateful for being here and living life!!

Over two weeks out from Zometa n my bones still r a hurting!!

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Wow! This one was a doozey! On day 15 after infusion and my joints still ache! So I decided to read up on my favorite drug of choice. Not only is this for bones but its given mets!! Didn’t know I was still getting a  chemo  like drug every six months. It also totally explains why I’m completely wiped out!! I thought its supposed to get easier with time?!? Or is that only broken hearts lol?  Well I only hope and pray by Monday its gone because with my brain like total mush at work, unable to recall the simplest things I can take the body pain on top of it. Fingers crosses it will be a pain free Monday!!

Setting my goal high for Strides! Time to start saving some lives!!

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Setting my goal high for Strides! Time to start saving some lives!!

I’m proud to say I am part of this amazing group of people fund raising to end breast cancer. This is my third year walking for ACS and I am looking forward to many more years of supporting the fight for a cure. My goal this is to raise $2800, surpassing my first walk of $2600. I KNOW I CAN DO THIS! And no one will tell me I can’t, your talking about a two time survivor so I am even more determined!

Please pass along my info by text, reblogg on WordPress, FB, twitter, word of mouth, carrier pigeon lol just anyway to get it out there. If your able to donate even a doller it’s greatly appreciated! If your unable to, just cheering my team on is a huge help! I am also selling several “unique” breast cancer support bracelets for donations( they make me laugh & I figured will make someone else laugh too).Please send me a message if you are interested in a bracelet and so can send you pics of them and arrangements to get it to you.

I just have to say I am just so excited for October! It’s a passion I have!! Now, pink is def not my fav color, but it a color for a great cause! I pray one day I won’t have to fund raise anymore because there will be a cure. Until then, Heathers “New” Rack Pack will be hitting the pavement every year!! I just want to be able to give back to what has been given to me. It’s karma!! And it makes the hell I’ve been through all worth it if I can help just one person!

So who’s ready to start supporting,donating and kick some cancer ass?!?!?

Thanks!!!! Heather aka, The “New” Rack Pack

PLEASE VISIT MY TEAM PAGE WITH THE LINK BELOW

Team URL: http://main.acsevents.org/goto/Heathersnewrackpack >

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My thought for the day…

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As I’m curled up in a ball in bed from my Zometa infusion taking my pain meds, I just had a deep thought… ( the best deep thought ARE when your taking pain meds of course lol)

I wish cancer, would get cancer and die!! :)    Screw you cancer!</

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Is it really infusion time again?!?! How much can a person take??

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Is it really infusion time again?!?! How much can a person take??

Yep, it’s been six months since my last vile infusion of Zometa. I am so horribly anxious about the pain. And yes, the night terrors have stated up. What I’m so anxious about Is this type of bone pain is indescribable. It gives me chills just thinking of how my legs, jaw and pelvis will ache and I won’t sleep or walk :( Unfortunately it is a evil necessity!

The positive is, three down seven to go!!!! Ok, not much positivity to go on with this one, but I’ll be happy I won’t have osteoporosis in my 70’s! So I guess BRING IT ON, I’ve been through worse, right?????

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Why do I still feel like everything is a struggle?

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Its like struggling to breathe.

Being back to work has been physically and mentally a struggle. By 3pm I’m done. I need a long, long nap. My chest hurts and my brain is MUSH! I constantly finding my self saying to my coworkers ” am I repeating myself” or forgetting something that was said to me two mins before. All I can say is its exhausting and frustrating! Its like I’m loosing my mind! Not to mention I’ve developed a lump on my right breast that protrudes. One Dr thinks its a cyst another think its scar tissue. I don’t even have to tell you what I think it is, it goes without saying. I feel like no one understands this part of the journey. The part where going back to life is a total struggle…

The other battle I still am dealing with is the denial of my disability. It blows my mind that someone who probably is not a doctor, and sure as hell does not know me, decided I should have been back to work three days after my last surgery, WTF!! What gives them the right to mess with my life, future, job and financial situation. This is weighing on my mind all the time.

And it goes without saying all of this just triggers the PTSD and panic attacks. When do I finally get a break and get to take breath and say, ” its all good, there are no fights for now”.

Anyone have any suggestions on how they got through this part?
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